Study published: Views, use, and experiences of access to pediatric electronic health records
2022-12-12
A scoping review study recently published in Journal of Medical Internet Research collated research on views, use, and experiences of web-based access to electronic health records for children, adolescents, and parents.
Enabling patients to access their electronic health records (EHRs) is thought to promote patient empowerment by involving patients in their own care, but it also raises questions of availability and integrity. The study included 74 articles published between 2007 and 2021. Perspectives included children and adolescents, parents, healthcare professionals, and other groups.
The results indicate that concerns of children’s, adolescents’, parents’ and healthcare professionals’ online record access commonly differ from lived experiences. The researchers found that patients and their parents often expressed positive experiences of web-based access to electronic health records while healthcare professionals held more concerns. The main concern among healthcare professionals was maintaining information privacy and confidentiality for adolescents in regards to parental access.
– Numerous suggestions have been made to mitigate ethical issues, says Josefin Hagström, who is the first author of the article. Among them is education for adolescents, parents, and healthcare professionals on how access to EHRs can be both provided and limited.
Read the full paper ‘Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review’. It is written by Josefin Hagström, Charlotte Blease, Barbara Haage, Isabella Scandurra, Scharlett Hansson, and Maria Hägglund.
News archive
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Chelsea Coumoundouros presented at EHPS Conference in Bremen
2023-09-20
Earlier this month U-CARE’s PhD student Chelsea Coumoundouros presented her work at the European Health Psychology Society (EHPS) conference in Bremen, Germany. ... -
Study published: Experiences of education about forced migrants who identify as LGBTQ+ refugees in nursing programs
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Study published: Association between polluting cooking fuels and congenital birth defects
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Researchers from the GuardiansCan project visit Tanzania
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Welcome to U-CARE Venue 2023
2023-08-14
After a two-year hiatus, U-CARE welcomes participants to this year's edition of U-CARE Venue with the theme 'Improving Value and Reducing Waste in Research'. The conference, featuring prominent resear... -
Faraja Chiwanga will present at congress in Dakar
2023-08-08
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Study Published: Discussion forum as support for young adults diagnosed with cancer
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Article published: An overview of the GuardiansCan project
2023-07-24
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Study published: Perspectives on implementation of ICBT among decision makers
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Erik Olsson appointed as professor
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Frida Svedin appointed as a member of the Advisory Board for Research!
2023-06-19
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Study published: The effect of beta-blocker therapy on quality of life of patients after an MI
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Course participants on site during Blodomloppet
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Yesterday, Sweden's largest excercise event, Blodomloppet, took place in Uppsala. The purpose of Blodomloppet is to raise awareness about the need for blood donation and promote a healthy lifestyle. I... -
Welcome, Abla Sami!
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Study published: The importance of intimacy in caregiving dyads
2023-05-29
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Luciana Terceiro appointed as PhD Student!
2023-05-26
Congratulations to Luciana Terceiro, who recently was appointed as a PhD Student in eHealth within U-CARE. Luciana will in her PhD project develop the internet-based research platform called the U-CAR... -
New video: A platform for eHealth research
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The U-CARE Platform is an internet-based research platform, developed within U-CARE. In the film, researchers Joanne Woodford and Mudassir Imran Mustafa explain how you can conduct eHealth research vi... -
Affiliated researcher to U-CARE interviewed in Status
2023-05-17
Fredrika Norlund, psychologist and affiliated researcher at U-CARE, is interviewed in the latest issue of Status – the national association Hjärtlung's membership magazine. In the interview, Fredrika ... -
Chelsea Coumoundouros will present at conference in Bremen
2023-05-15
U-CARE’s PhD student Chelsea Coumoundouros will give two presentations at the European Health Psychology Society Conference (EHPS) that takes place in Bremen in September. Chelsea will give an oral pr... -
Frida Svedin will present at the Cochrane Colloquium in London
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U-CARE’s PhD student Frida Svedin will present at the 2023 edition of the Cochrane Colloquium in London in September. Frida will present results from the INVOLVERA study at the conference, which focus... -
Erik Olsson interviewed for Status
2023-05-08
Associate Professor Erik Olsson is interviewed in the latest issue of Status - the membership magazine of the Swedish funding association Riksförbundet Hjärtlung. In the interview, Erik talks about hi... -
Study published: Long-term effects of an internet-based psychological intervention in patients with cancer
2023-05-05
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Study published: Effectiveness of CBT for maternal perinatal depression
2023-04-18
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Study published: Effects on heart rate viability with the treatment of brain stimulation
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Low-intensity CBT workbooks are translated into ten languages
2023-04-04
The National Health Service (NHS) in the United Kingdom has translated workbooks for treating common mental health difficulties into the UK’s top ten languages after English that a researcher within U... -
Erik Olsson presented at seminar about digital services in healthcare
2023-03-22
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New video: Louise von Essen on U-CARE and GuardiansCan
2023-03-03
Louise von Essen is a licensed psychologist and professor in Healthcare Sciences and leads the research programme U-CARE. In the film, Louise presents the research conducted within U-CARE and her rese... -
New video: Maria Hägglund on access to electronic health records
2023-03-01
Maria Hägglund is an associate professor in Health informatics and an associated researcher to U-CARE. In the film, Maria talks about her research on patients’ access to electronic health records and ... -
Welcome Maria Hanser!
2023-02-23
Welcome to U-CARE Maria Hanser, who recently started her position as a research assistant. Maria will work on a project where the researchers investigate how children with motor difficulties experienc... -
New video: Erik Olsson on psychological aspects of heart disease
2023-02-22
Erik Olsson is a licensed psychologist and associate professor in Clinical Psychology and a researcher in U-CARE. In the film, Erik talks about his research where he develops an internet-based cogniti... -
New video: Joanne Woodford on support for informal caregivers
2023-02-17
Joanne Woodford is an assistant senior lecturer in Healthcare Sciences and a researcher in U-CARE. In the film, Joanne talks about her research, focusing on development of psychological support for in... -
Opinion piece published: ‘Invest in stress interventions in primary care’
2023-02-16
'In the current recession with difficult economic conditions making life more stressful, more people are at risk of suffering a myocardial infarction due to stress.' In today's edition of the news sit... -
Welcome Sajad, Nataliia, and Leonora!
2023-02-16
U-CARE welcomes new system developers Sajad Sharhani and Nataliia Snezhkina, and student employee Leonora Stiernborg. They will, together with the development team, work on a new version of the U-CARE... -
U-CARE arranged an event to celebrate research
2023-02-15
February 14, U-CARE arranged the event ‘For the love of science’ at Reginateatern in Uppsala. During the evening, the new research videos that U-CARE has produced were screened, and the participants t... -
Welcome Luciana Terceiro!
2023-02-06
Welcome, Luciana Terceiro, who recently started her position as a research assistant. Luciana will, together with the development team, work on a new version of the U-CARE portal. Research assi... -
U-CARE presents new research videos at Reginateatern
2023-02-02
Together with the production company Phosworks, U-CARE has produced research videos where members from U-CARE’s research group present their studies and projects. The videos will be screened at Regina... -
Study published: Experiences of the pandemic among women in homelessness
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Study published: Self-help intervention preferences among informal caregivers of people with chronic kidney disease
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A study recently published in BMC Nephrology explored what informal caregivers of people living with chronic kidney disease want in self-help interventions. ... -
Funding for investigating psychosocial stress as a risk factor for myocardial infarction
2023-01-10
A grant of SEK 250 000 has been approved for a project that will investigate psychosocial stress as a risk factor for younger and older patients who suffer a myocardial infarction. The funding has bee... -
Study published: Concerns experienced by parents of children treated for cancer
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A qualitative study highlighting parents' experience of concerns after their children have completed cancer treatment was recently published in the journal Psycho-Oncology. The study has been carried ... -
Christina Reuther appointed as PhD student!
2022-12-16
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Sara Riggare co-authors book about pain
2022-12-15
Congratulations, Sara Riggare, who has co-authored a recently published book about pain. ... -
Study published: Patients’ experiences following a myocardial infarction
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Workshop on developing health and social care interventions
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U-CARE is currently organizing a two-day workshop with researcher David Richards, professor at Western Norway University of Applied Sciences. The workshop focuses on techniques for developing complex ... -
Study published: Views, use, and experiences of access to pediatric electronic health records
2022-12-12
A scoping review study recently published in Journal of Medical Internet Research collated research on views, use, and experiences of web-based access to electronic health records for children, adoles... -
New members of U-CARE’s executive board
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Study published: Psychosocial challenges for LGBTQ+ forced migrants
2022-12-05
In a study recently published in Journal of Advanced Nursing, the researchers explore the psychosocial challenges among LGBTQ+ forced migrants. ... -
U-CARE is part of new unit
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The board of the Department of Women's and Children's Health has decided to form a new unit in which U-CARE now is included. ... -
Study published: Implementation of e-mental health interventions for informal caregivers
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A study recently published in JMIR Mental Health explored barriers and facilitators to implementation of e-mental health interventions for informal caregivers of adults living with chronic diseases. ... -
Internet-based treatment of stress and anxiety among patients after myocardial infarction with MINOCA or takotsubo
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In two articles published in Trials and Internet Interventions, respectively, the authors investigate whether internet-based cognitive behavioural therapy (CBT) can be implemented to reduce stress amo...
Last modified: 2023-03-24